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The development and validation of the CARe Burn Scale - Adult Form: a Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury

Griffiths, C, Guest, E, Pickles, T, Hollén, L, Grzeda, M, White, P, Tollow, P and Harcourt, D 2019. The development and validation of the CARe Burn Scale - Adult Form: a Patient Reported Outcome Measure (PROM) to assess quality of life for adults living with a burn injury. Journal of Burn Care and Research 40 (36) , pp. 312-326. 10.1093/jbcr/irz021
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Abstract

Introduction Patient Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale - Adult Form: a PROM that assesses quality of life in adults living with a burn injury. Methods 11 patient, 10 family member and 4 health professional interviews, and a systematic review informed the development of a conceptual framework and a draft measure. Cognitive debriefing interviews conducted with 3 adult burn patients, 1 family member and 8 health professionals provided feedback to ascertain content validity of the measure. The measure was then field tested with 304 adult burn patients. Rasch psychometric analysis was conducted for scale reduction, and traditional psychometric analyses provided a comparison with other measures. Further psychometric testing with an additional 118 adult burn patients tested the shortened CARe Burn Scale in relation to other quality of life PROMs. Results The conceptual framework outlined 14 domains; 12 of which fulfilled Rasch and traditional psychometric analyses. Two individual scales did not fulfil the Rasch criteria and were retained as checklists. Individual CARe Burn Scales correlated moderately-to-highly with other quality of life scales measuring similar constructs, and had low-to-no correlations with dissimilar constructs and the majority of sociodemographic factors, indicating evidence of concurrent and divergent validity. Conclusions The CARe Burn Scale – Adult Form can help identify patient needs and provides burns-specialist health professionals with a tool to assess quality of life and therapeutic progress after a burn event and related treatment.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Centre for Trials Research (CNTRR)
Publisher: Lippincott, Williams & Wilkins
ISSN: 1559-047X
Funders: Restore Burn and Wound Research, the Scar Free Foundation and Dan�s Fund for Burns
Date of First Compliant Deposit: 11 March 2019
Date of Acceptance: 1 March 2019
Last Modified: 28 Jun 2019 12:37
URI: http://orca.cf.ac.uk/id/eprint/120538

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