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Plenary: bringing palliative care to the public and the impact of new media [Abstract]

Taubert, Mark 2019. Plenary: bringing palliative care to the public and the impact of new media [Abstract]. Presented at: 16th World Congress of the EAPC, Berlin, Germany, 23-25 May 2019. Palliative Medicine. , vol. 6. SAGE, p. 9. 10.1177/0269216319844405

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Abstract

How do we bring complex matters that come up in our daily practice to wider attention? How do we share some of the most challenging moral conundrums in palliative care and ascertain public attitude towards them? In this plenary talk, Dr Mark Taubert will outline his experience of making sensitive use of sound & vision via new media in order to ask pertinent questions that have been with our specialty for decades. Initially strongly advised not to go ahead and create social media content videos for the public to discuss ‘Do Not Attempt Cardiopulmonary Resuscitation’ (DNACPR) decisions online, an app and a website called #TalkCPR http://talkcpr.com were nevertheless created with extensive patient support.The Welsh website and Youtube Byw Nawr TalkCPR videos have been accessed over a million times from all over the world. TalkCPR video media pads can now be found in all general practice surgeries in Wales and in hospitals and nursing homes, but they have been used as far away as Lesotho. This is real shared patient and public engagement. But there is a raw and dark side to new media. The sometimes emotive topics of palliative & end of life care can attract elements to this forum that wish to hurt and disrupt. Without expert input, the quality of the debate can suffer and build on fallacies. This plenary talk will outline how Quality Improvement methodology was used to evaluate sense and sensibility of advance care planning resources, and how expertise from colleagues who work in IT, television, social media and government was vital in stepwise national project outcomes. Dr Taubert is national strategic lead for Advance and Future Care Planning in Wales, a role that amongst other things, requires sound knowledge of Twitter, Facebook and Youtube. He will outline some of the conundrums he has faced, and perhaps convince new media phobics at EAPC World Congress to join the often passionate online debate. His Twitter account is @DrMarkTaubert

Item Type: Conference or Workshop Item (Other)
Date Type: Published Online
Status: Published
Schools: Medicine
Additional Information: Published Conference Abstract
Publisher: SAGE
ISSN: 0269-2163
Last Modified: 24 Jul 2019 11:20
URI: http://orca.cf.ac.uk/id/eprint/123003

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