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Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know?

Sivell, Stephanie, Lidstone, Victoria, Taubert, Mark and Nelson, Annmarie 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know? Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013. European Journal of Palliative Care. suppl. p. 60.

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Abstract

Aims: The prognosis of life-limiting conditions in childhood has improved and an increasing number of young people are accessing adult Specialist Palliative Care (SPC) services. Adult SPC teams are sometimes inexperienced in caring for the complex needs of young people and have concerns regarding skills, knowledge and service capabilities. We aimed to identify the training needs of SPC teams regarding the care of young adults. Methods: Delphi: An online Delphi process collated expert opinion on format, delivery and content of the package. Round 1 participants (n=44) answered free text questions, generating items for Round 2. In Round 2, 68 participants rated the extent to which they agreed/disagreed with the items on 5- point Likert type scales. Median and mean scores assessed the importance of each item. Interquartile range scores assessed level of consensus for each item; items lacking consensus were re-rated by 35 participants in Round 3. Focus Groups: Focus groups were held with young people pre-transition, post-transition, parents/carers of young people post-transition and staff from a local adult hospice. Discussions explored the care and support needs of young people and their families, and the training needs of SPC teams. Data were analysed using thematic analysis. Results: Delphi: Consensus was reached on a range of suggested formats, on who could deliver the training, and on several clinical, psychosocial and practical topics. Training should be delivered as a continuous/rolling programme and not as ‘a one-off’. Focus Groups: Discussions centred on: challenges of caring for young people; barriers to transition; staff education and training; facilitating transition. Conclusions: Recommendations include a continuous/rolling programme of education, tailored for content and mode of delivery, and incorporated into working practice. A template to guide handover and a single point of contact would facilitate the transition process.

Item Type: Conference or Workshop Item (Lecture)
Status: Published
Schools: Medicine
Date of First Compliant Deposit: 11 March 2020
Last Modified: 12 Mar 2020 15:14
URI: http://orca.cf.ac.uk/id/eprint/126889

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