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Children's health information matters: researching the practice of and requirements for age appropriate health information for children and young people. [Final report. NIHR Service Delivery and Organisation programme]

Williams, Anne Melita, Noyes, Jane, Chandler-Oatts, Jackie, Allen, Davina Ann, Brocklehurst, Peter, Carter, Cynthia, Gregory, John Welbourn, Lenton, Simon, Lewis, Mary, Lowes, Lesley Madeline and Threadgold, Terry Roslyn 2011. Children's health information matters: researching the practice of and requirements for age appropriate health information for children and young people. [Final report. NIHR Service Delivery and Organisation programme]. [Project Report]. NETSCC. Available at: http://www.netscc.ac.uk/hsdr/files/project/SDO_FR_...

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Abstract

Background: Children, young people and their families need high quality information in order to support decisions they make about looking after themselves and staying healthy. When children are unwell, they and their families require tailored information to make choices about their health and healthcare, the medicines they take and the various services that the NHS offers. However, very little information has been specifically produced for children and their families and very little is known about their information preferences and how information is used.What we propose to do: We will undertake a study to provide a full picture of the information needs and preferences of children and young people, under 18 years with specific healthcare needs and conditions, and their families, and make this information widely available.About the Study: Using a three-phase research design that includes a range of children/young people under 18 years with common long-term conditions including asthma, diabetes, and disabled children with complex needs, and acute conditions including unplanned orthopaedic surgery/interventions and planned ear, nose and throat surgery, we will:1. Review literature and currently available information sources for children under 18 years and their families;2. Conduct interviews with children, young people, family members and health professionals, and observe where information is exchanged and used in routine clinical practice, and3. Combine information from phases 1 & 2 to make recommendations concerning children/young people and family members information needs and preferences.We will publish papers and web-based resources, including a version of the report for the public. This will ensure maximum impact of our findings amongst health service users, practitioners, managers and policy makers.

Item Type: Monograph (Project Report)
Date Type: Publication
Status: Published
Schools: Journalism, Media and Culture
Medicine
Healthcare Sciences
Subjects: H Social Sciences > H Social Sciences (General)
R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
R Medicine > RT Nursing
Uncontrolled Keywords: self-care; young people; children; medicine-taking; cost-effective care; long-term condition; high quality information; types and formats; empowering children; families; decision-making
Additional Information: Outputs: 1: Williams, A; Noyes, J. The Information Matters Project: health, medicines and self-care choices made by children, young people and their families: information to support decision-making. Study protocol. Journal of Advanced Nursing 2009;65(9):1807-1816
Publisher: NETSCC
Related URLs:
Last Modified: 06 Dec 2018 20:35
URI: http://orca.cf.ac.uk/id/eprint/20191

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