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Shock, adjust, decide: reproductive decision making in Cystic Fibrosis (CF) carrier couples - a qualitative study

Myring, Jessica, Beckett, William, Jassi, Rupinder, Roberts, Theresa, Sayers, Richard, Scotcher, Diana and McAllister, Marion 2011. Shock, adjust, decide: reproductive decision making in Cystic Fibrosis (CF) carrier couples - a qualitative study. Journal of Genetic Counseling 20 (4) , pp. 404-417. 10.1007/s10897-011-9363-z

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Abstract

Cystic fibrosis (CF) is the most common recessive condition affecting the White British population. Facilitating reproductive decision making for couples at genetic risk for CF is an important aspect of genetic counseling practice in the UK. The purpose of this study was to explore the reproductive decision making process for 31 members of CF carrier couples (15 men and 16 women) with or without an affected child. The design involved a qualitative approach consisting of semi-structured interviews and data analysis informed by grounded theory methodology. Sex and personal experience of CF were identified as factors that may influence reproductive decision making. Findings suggest these hypotheses: (1) CF carrier couples who have an affected child/pregnancy, are more likely to embark on another pregnancy than couples who have a healthy child from an at-risk pregnancy, and (2) men and women play different roles in the reproductive decision making process. Data analysis resulted in development of a structured framework modeling the reproductive decision making process, which may be helpful in guiding genetic counseling with CF carrier couples and other at risk couples making reproductive decisions.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Subjects: Q Science > QH Natural history > QH426 Genetics
R Medicine > R Medicine (General)
Uncontrolled Keywords: Genetic counseling; Reproductive decisions; Cystic fibrosis; Genetic risk
Publisher: Springer
ISSN: 1059-7700
Last Modified: 04 Jun 2017 03:36
URI: http://orca.cf.ac.uk/id/eprint/23566

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