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Experiences of adult stroke survivors and their parent carers: A qualitative study

Jones, Lisa and Morris, Reg 2013. Experiences of adult stroke survivors and their parent carers: A qualitative study. Clinical Rehabilitation 27 (3) , pp. 272-280. 10.1177/0269215512455532

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Abstract

Objective:To explore the experiences of adult stroke survivors and their parent carers.Design:Qualitative methodology: interpretative phenomenological analysis.Setting:Six residential areas across England and south Wales.Participants:Six adult stroke survivors (aged 27-46), six mothers (aged 59-76) and five fathers (aged 55-76).Method:Semi-structured interviews to explore the relationship and interactions between parent and survivor prior to and after a stroke, with opportunities to explore both positive and negative changes. All interviews were transcribed and analysed by a six step interpretative phenomenological analysis process. Survivors, mothers and fathers were analysed as three separate groups and the results were synthesised.Results:Identical and interconnected themes emerged from the three groups, permitting synthesis into a single organising framework with four superordinate themes capturing the key issues for all three groups. The four superordinate themes were: 'emotional turmoil'; 'significance of parents'; 'negotiating independence versus dependence' and 'changed relationships'.Conclusions:Parents reported adjusting to caring with relative ease. Survivors did not adjust to being cared for with such ease and felt positioned in a child role. Balancing independence and dependence was a challenge for survivors and parents and is considered within a systemic theory framework. Implications for service developments and guidelines are considered.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Psychology
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Uncontrolled Keywords: Stroke; carers; survivors; qualitative; parents
Publisher: SAGE Publications
ISSN: 0269-2155
Last Modified: 04 Jun 2017 04:40
URI: http://orca.cf.ac.uk/id/eprint/42770

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