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Learning disability and epilepsy. 2, a review of available outcome measures and position statement on development priorities

Espie, C. A., Kerr, Michael Patrick, Paul, A., O'Brien, G., Betts, T., Clark, J., Jacoby, A. and Baker, G. 1997. Learning disability and epilepsy. 2, a review of available outcome measures and position statement on development priorities. Seizure - European Journal of Epilepsy 6 (5) , pp. 337-350. 10.1016/S1059-1311(97)80033-7

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Abstract

People with epilepsy plus learning disabilities pose a challenge in terms of clinical management and research investigation, and, to date, the measurement of outcomes in this population has been limited. There have been uncertainties concerning both the 'what' and the 'how' of assessment. This paper presents a comprehensive review of available outcome measures across nine domains, i.e. relating to seizures, drugs, cognitive function, behaviour, social functioning, carer functioning, attitudes, motivation and 'quality of life'. This last domain reflects more global measures designed to encompass several assessment strands. The uses and limitations of each scale is discussed and, where data are available, psychometric properties are also presented. The paper concludes with suggestions for the further development of outcome measures in this population.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
MRC Centre for Neuropsychiatric Genetics and Genomics (CNGG)
Subjects: R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Publisher: Elsevier
ISSN: 1059-1311
Last Modified: 04 Jun 2017 08:38
URI: http://orca.cf.ac.uk/id/eprint/81803

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Cited 26 times in Web of Science. View in Web of Science.

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