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Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study

Clare, Linda, Nelis, Sharon M., Quinn, Catherine, Martyr, Anthony, Henderson, Catherine, Hindle, John V., Jones, Ian Rees, Jones, Roy W., Knapp, Martin, Kopelman, Michael D, Morris, Robin G, Pickett, James A, Rusted, Jennifer M, Savitch, Nada M, Thom, Jeanette M and Victor, Christina R 2014. Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study. Health and Quality of Life Outcomes 12 (1) , 164. 10.1186/s12955-014-0164-6

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Abstract

Background Enabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers. Methods/Design Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth. Discussion The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Social Sciences (Includes Criminology and Education)
Wales Institute of Social & Economic Research, Data & Methods (WISERD)
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Publisher: BioMed Central
ISSN: 1477-7525
Date of First Compliant Deposit: 30 March 2016
Date of Acceptance: 28 October 2014
Last Modified: 18 Feb 2019 14:44
URI: http://orca.cf.ac.uk/id/eprint/82670

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