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Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]

Wheelwright, S. J., Hopkinson, Jane B., Darlington, A.-S., Fitzsimmons, D. F. and Johnson, C. D. 2015. Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]. Journal of Cachexia, Sarcopenia and Muscle 6 (4) , pp. 471-509. 10.1002/jcsm.12087

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Abstract

Background: Cancer cachexia has a negative impact on the quality of life of both patients and their informal caregivers but there are few psychoeducational interventions to address this. This study is the first step in the development of a workshop to support patients with cancer cachexia and their carers. Methods: Interviews were carried out with 5 patients, 5 carers and 5 health care professionals (HCPs) to create two logic models, one to identify the antecedents (root causes) of why unintentional weight loss is difficult for people with cancer and one for why it is difficult for their informal caregivers. The maps were supplemented with data from previously conducted semi-structured interviews with 39 patients and 12 HCPs and from systematic reviews of the patient and carer literature. Members of the project advisory panel rated the importance and changeability of each antecedent in the context of a workshop. The highest scoring antecedents were grouped to form intervention targets. Results: A total of 54 antecedents were identified for patients and 65 for carers, with 15 patient antecedents and 14 for carers scoring above the mean for both importance and changeability. Not knowing what to do for the best, conflict with each other and negative emo- tions were high scoring patient and carer antecedents. Forcing self to eat rated highly for patients. Food provision and managing patient’ s dependency rated highly for carers. The high scoring antecedents were grouped together to form three intervention targets: providing information about eating well with cancer, resolving conflict and dealing with negative emotions. Conclusion: Interviews and literature reviews have guided the inter- vention targets for a workshop on cancer cachexia aimed at both pa- tients and their carers. Three areas, important and amenable to change, were identified. The workshop will educate, aid coping and provide relationship support.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Healthcare Sciences
Subjects: R Medicine > RT Nursing
Publisher: Wiley-Blackwell
Last Modified: 08 Mar 2019 11:11
URI: http://orca.cf.ac.uk/id/eprint/87570

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