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Participatory methods to explore the ‘Lifeworld’ and views of children and young people with cerebral palsy about ‘Participation’ in recreational activities

Pickering, Dawn, Gill, Paul and Reagon, Carly 2016. Participatory methods to explore the ‘Lifeworld’ and views of children and young people with cerebral palsy about ‘Participation’ in recreational activities. Presented at: Innovative Research methods with Children and Young People, Cardiff, 25 April 2016.

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Abstract

Participation in health has been based upon the World Health Organisation’s International Classification of Functioning as ‘involvement in life situations’. However, in the social science literature, participation is based upon children’s rights being defined as the ‘Act of doing and being involved’ where both voice and agency play a role in influencing change. King (2013) suggests the way forward should explore these social aspects of participation including their ‘lived experiences’. The purpose of this study is to explore the Lifeworld and views of children and youth with Cerebral Palsy (CP), about what participation in recreational activities means to them in terms of managing their own health and wellbeing. Qualitative methods: Participatory methods with 2 pilot case studies were developed using puppetry and ‘sandboxing’ (Mannay, 2015). 2 Interviews before and after a diary of recreational activities was completed over 12 weeks. Data were analysed using an interpretative phenomenological approach. Themes which emerged included enriched perspectives of the emotional impact of living with CP and metaphors to enhance our understanding of their health and wellbeing. More data is needed to fully appreciate the Lifeworld of a child or young person with CP, participating in recreational activities, before healthcare practice can be influenced.

Item Type: Conference or Workshop Item (Paper)
Status: Unpublished
Schools: Healthcare Sciences
Subjects: H Social Sciences > H Social Sciences (General)
R Medicine > RJ Pediatrics
Date of First Compliant Deposit: 28 April 2016
Last Modified: 24 May 2019 20:06
URI: http://orca.cf.ac.uk/id/eprint/89969

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