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Intestinal failure in children and young people with neurodisabling conditions

Wahid, Amar M., Powell, Colin, Davies, Ieuan H, Evans, Jennifer and Jenkins, Huw R 2017. Intestinal failure in children and young people with neurodisabling conditions. Archives of Disease in Childhood 102 (5) , pp. 475-476. 10.1136/archdischild-2016-311387

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Gastrointestinal dysmotility is common in children and young people with neurodisabling conditions. In this article we seek to highlight the increasing difficulties faced by paediatricians in managing intestinal failure in this patient group. It is becoming clear that, as the median age for survival increases, intestinal failure is a significant problem, and can in some cases become life-limiting. The ethical issues around starting children with life-limiting conditions on parenteral nutrition (PN) are extremely complicated, not least because we are ignorant of the mechanism of intestinal failure in these children, and indeed, which of these children might be able to return to enteral feeding after a period of PN. Our article highlights these issues, drawing on our experience of a particularly difficult case, which we hope will stimulate further discussion among paediatricians providing care for children with neurodisabling conditions.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Subjects: R Medicine > RJ Pediatrics
Publisher: BMJ Publishing Group
ISSN: 0003-9888
Date of First Compliant Deposit: 13 December 2018
Date of Acceptance: 23 October 2016
Last Modified: 29 Jun 2019 08:16

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