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Meet the researchers: an alternative method of engaging patients with research in mesothelioma

Hill, Kate, Portman, Mags and Tabi, Zsuzsanna 2018. Meet the researchers: an alternative method of engaging patients with research in mesothelioma. Research Involvement and Engagement 4 (1) , 33. 10.1186/s40900-018-0119-x

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Abstract

There are new ways to engage people with science and research but many patient support groups and charitable organisations still hold traditional meetings to provide updates on their activities and to report new developments in their field of interest. These meetings often feature presentations given by medical doctors or, in the case of research-focussed organisations, by research scientists. Receiving feedback from people who are confused and sometimes upset by some types of information, and the way it is presented at meetings, made us think about better ways for researchers to discuss their ideas for new research, or share the findings from completed projects, with patients and members of the public. This article describes a method of public engagement called “Meet the Researchers” that enables people to hear about current trends in research face to face with the researchers planning or conducting it. “Meet the Researchers” is designed to promote discussion and allow questions to be asked in a relaxed and informal way, in small groups, which is less daunting than asking questions in front of a conference audience. The aim is to break down the barriers between researchers and patients, and enable conversations that will lead to meaningful engagement and a better understanding of research. Additionally we aim to improve understanding of how results are passed on to doctors and nurses and translated into improvements in patient care. The method was tested with patients and was rated very highly by them in the feedback they gave.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Publisher: BioMed Central
ISSN: 2056-7529
Date of First Compliant Deposit: 29 November 2018
Date of Acceptance: 31 August 2018
Last Modified: 07 Nov 2023 16:47
URI: https://orca.cardiff.ac.uk/id/eprint/117213

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