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"It's all changed:" carers' experiences of caring for adults who have Down’s syndrome and dementia

McLaughlin, K. and Jones, Aled ORCID: https://orcid.org/0000-0002-2921-8236 2011. "It's all changed:" carers' experiences of caring for adults who have Down’s syndrome and dementia. British Journal of Learning Disabilities 39 (1) , pp. 57-63. 10.1111/j.1468-3156.2010.00618.x

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Abstract

A qualitative interview study was undertaken to determine the information and support needs of carers of adults who have Down’s syndrome and dementia. The data were analysed thematically. Carers’ information and support needs were seen to change at pre-diagnosis, diagnosis and post-diagnosis. Helping carers to manage the changing nature of the adult with dementia is seen to be an essential part of the health professional’s role.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Healthcare Sciences
Subjects: R Medicine > RT Nursing
Uncontrolled Keywords: Carers; dementia; Down’s syndrome; information needs; research; support
Publisher: Wiley-Blackwell
ISSN: 1354-4187
Last Modified: 14 Dec 2022 02:07
URI: https://orca.cardiff.ac.uk/id/eprint/13526

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